What we offer
Every day we work to provide practical support, reliable information and a strong voice for people with Cystic Fibrosis in Albania.
We are by your side at every step of the journey.
When a family receives a Cystic Fibrosis diagnosis, life changes in an instant. FK-ShPPSh exists for that very moment — and for every moment that follows.
Financial and logistical support to obtain essential medicines and medical equipment.
We connect families with leading specialists in Albania and abroad for consultations and treatment.
Support groups where parents share experiences, advice and strength with one another.
We are always available for questions, guidance and urgent support.
Accurate knowledge for care and treatment.
Accurate information saves lives. We work so that every patient, parent and doctor can access the latest scientific information — in clear, accessible language.
Brochures, guides and digital resources for patients and families.
Educational sessions with doctors, dietitians, physiotherapists and psychologists.
Translations and summaries of the latest studies on CF, CFTR modulators and CRISPR.
Access to CF Europe, ECFS and Cystic Fibrosis Foundation networks for global information.
Patients’ voice, the force for change.
People with CF in Albania deserve the same rights as those in every other European country. FK-ShPPSh represents their voice with institutions.
We work with public institutions for better access to medicines, newborn screening and specialist care.
Events, social media and public activities to increase awareness of CF in Albania.
We defend the right to treatment, education, employment and a dignified life for every person with CF.
Part of CF Europe and partners with organisations in Italy, across Europe and beyond.
